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Patient handout · Immune & Infectious Disease

Living Well With HIV: Your Medicine Guide

HIV is a virus that weakens your immune system. HIV medicines keep the virus under control, so you stay healthy and protect others.

Take your medicine every day

  • Take it at the same time each day. Set a phone alarm.
  • Never stop or skip doses, even when you feel well. Missed doses help the virus resist your medicine.
  • If you miss a dose, follow your pharmacist's advice. Never take 2 doses at once.
  • Refill before you run out.

Know your numbers

  • Viral load: how much virus is in your blood. The goal is undetectable.
  • CD4 count: how strong your immune system is.
  • Keep every blood test. Next test: ____________.

Undetectable = Untransmittable (U=U)

  • If your viral load stays undetectable, you do not pass HIV to partners through sex.
  • Use condoms to prevent other infections passed through sex.
  • Never share needles. Do not share razors or toothbrushes.

Check before other medicines

  • Tell every provider, dentist, and pharmacist that you take HIV medicine.
  • Do not take St. John's wort.
  • Ask when to take antacids (Tums, Maalox), iron, or calcium. They need to be taken hours apart from some HIV medicines.

Stay protected

  • Get the vaccines your provider advises, including a yearly flu shot.
  • Wash your hands often.

Call your provider today if you have

  • A new rash
  • Yellow skin or eyes, or dark urine
  • A new fever, night sweats, or a cough that will not go away
  • Missed doses, or you are running out of medicine

Call 911 or your local emergency number if you have

  • A rash with blisters, peeling skin, or mouth sores
  • Swelling of your face, lips, tongue, or throat
  • Severe trouble breathing or chest pain
  • A severe headache with a stiff neck, confusion, or a seizure

This handout supports, not replaces, advice from your own nurse or doctor.

For nurses and nursing students: the teaching guide behind this handout →